Last Monday I saw the urology oncologist who I fired. He has horrible bedside manner and has never done an exam, although he has charged me as if he has. Kaycee and my mom were with me at my appointment. I told him that I wanted to have the stint removed and to have an nephrostomy tube. He had the nerve to tell me that I have metastatic OVC and that I was eventually going to die. I practically had to pick up Kaycee's jaw as it hit the floor when she heard that. Really! Nurse Pat informed us this week that she will be retiring in October. This will be a very sad day. She is sometimes challenged to get blood from my port, but always seems to get it working.
After that decision was made we enjoyed lunch on the patio. I love this friend of mine. It's always fun to catch up with her.
I got my own wheelchair this week. The pain in my lower back is so intense when I stand or walk. I was hoping an injection would cure this, however I had it done last Friday and didn't feel any different. I can't even go on a walk. I'm in pain to stand to do my hair, put on my makeup and to brush my teeth. I did have a massage through MSTI which did improve the symptoms for a few days but then the pain returned.
Monday I got my new back jewelry. I've named it Poppy the pee bag. The stent broke when they tried to remove it so today a new urologist removed it. He was so kind and saw me this morning and did the procedure this evening. Thankfully I have no more discomfort from the stent! In fact I feel fabulous Poppy and All!
Because there is a large tumor surrounding the left kidney, they had to place the nephrostomy tube in the top of the kidney by going through the lower ribs. This has caused some drainage from the chest cavity, which I've had to go back and forth to the hospital to get it stitched and taken care of. We spent more time in and out of the hospital and Dr.s offices since I've been home. Hoping for a break. One day that I was getting things worked out, we ran into Dr. C. I sure love her! She was my surgeon when I was first diagnosed.
We've also spent the last few weekends watching Gavin play baseball. He's getting pretty good at this sport. It's been a little chilly and rainy here, not how I like starting my Summer.
The kids came home this past weekend for Father's Day. It's always fun to be home together. Mom needed groceries for when the kids came home, so she put me in a cart at the super market, because I haven't been able to stand without pain.
Because there is a large tumor surrounding the left kidney, they had to place the nephrostomy tube in the top of the kidney by going through the lower ribs. This has caused some drainage from the chest cavity, which I've had to go back and forth to the hospital to get it stitched and taken care of. We spent more time in and out of the hospital and Dr.s offices since I've been home. Hoping for a break. One day that I was getting things worked out, we ran into Dr. C. I sure love her! She was my surgeon when I was first diagnosed.
